Kidney Cancer Support Network

is here to help and support you

We are the UK’s largest and most active patient-led kidney cancer charity. Whether you are a patient, survivor or someone you know has been diagnosed with kidney cancer, you have come to the right place to find support and information, and to be part of a caring and knowledgeable community of people: We are here to help you.

The KCSN has been supporting kidney cancer patients and carers since 2006. We are a very special type of charity. We are all cancer patients or carers to people with kidney cancer, and we provide a very special type of support because we know just what you are going through.

The KCSN has many hundreds of members across the UK whose lives have been affected by kidney cancer; we share our experiences and we support and care about each other. You can find out more about who we are and how we support each other by reading our About Us page.

Make a difference and join the KCSN patient registry

Please help us with a very special and unique project. We are gathering  information about the diagnosis, treatment and care of kidney cancer patients in the UK’s first kidney cancer patient registry. Patient-generated data like this has been a huge gap in the armoury of clinicians and researchers, who need real world data to help them in their work.

Real world data is the information collected from patients outside the constraints of a clinical trial to evaluate what is happening in normal clinical practice. It can tell us what happens as patients go about their everyday lives whilst being treated, and it can give information about side effects to drugs, quality of life and recovery after surgery.

The use of real world data is becoming increasingly important to researchers, clinicians and regulatory bodies, such as the National Institute for Health and Care Excellence (NICE), where it can affect decisions made about access to new innovative medicines.

KCSN is in a unique position to do this because we have the largest and most active membership of patients and carers to run an important project like this. We would like to invite you to become part of the first ever UK-wide registry of kidney cancer patient information.

Please visit our Patient Registry page for further information and to access the patent registry.

Please note:  The requirements of the Data Protection Act will be strictly followed at all times when handling personal health and identifying information. Please see our Privacy and Data Protection Policy for more information about what this involves.