Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Steve shares his experience of living with kidney cancer

Join our patient support forum for friendly patient-to-patient support and advice

Learn about Action Kidney Cancer’s patient services

Newly diagnosed with kidney cancer

Kidney cancer treatments

Fundraising

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

17 Apr 2024

Cancer52 manifesto launch

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12 Apr 2024

Immunotherapy combinations versus TKIs for papillary renal cell carcinoma

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9 Apr 2024

CAR T cell immunotherapy shows promise for patients with kidney cancer

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9 Apr 2024

Real world data on the use of cabozantinib plus immunotherapy in the second line

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25 Mar 2024

How to manage anxiety and depression when you have kidney cancer

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12 Mar 2024

Immunotherapy improves survival in kidney cancer patients with brain metastases

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8 Mar 2024

Radiotherapy for the management of renal medullary carcinoma

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8 Mar 2024

Manchester patient focus group

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8 Mar 2024

NICE approves cabozantinib plus nivolumab for advanced kidney cancer

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15 Feb 2024

PRISM study highlights possibility of reducing dose of immunotherapy

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15 Feb 2024

World-class radiotherapy in the UK

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7 Feb 2024

Summary of kidney cancer highlights from ASCO GU 2024

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Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer13 hours ago
We have added another new videos to our ask Ask the expert videos. In this series of videos, experts in the treatment and care of kidney cancer patients answer your questions.

The latest addition is Ask the expert: Counselling during and beyond treatment for kidney cancer. In this video interview, Steve Pointon talks with Christine Jackson, Person Centred Counsellor, about how person-centred counselling can help a patient and their loved ones during and beyond kidney cancer treatment.

If you need help with anxiety, depression or fear, please take a look at our Help Sheet on Counselling, in the Help Sheet section of our website.

To watch these videos please follow the link below:

https://actionkidneycancer.org/help-support/ask-the-expert/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
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Action Kidney Cancer13 hours ago
We would love for you to join an Ultra Challenge Event in 2024 to support us.

The 2024 Ultra Challenge Series is open for registrations, if you a keen walker or runner looking for a challenge or want to get in shape, to re-energise, or you or a family member would like to to fundraise for us, then one of these events may be suitable.

Whether it’s along a stunning coastline, or on trails in the best of Britain’s countryside, your Ultra Challenge will be unforgettable. With full support all the way, new friends made, and an amazing sense of achievement.

Ultra Challenge Series 2024 prices have been frozen, they are offering events at the same price as in 2020.

Join an event, get active, and go for it!

For information about the events on offer, please take a look here:

https://actionkidneycancer.org/event/ultra-challenge-events-2024/
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Action Kidney Cancer1 day ago
Yesterday (16 April 2024) Cancer52 launched 'The Other Half. A manifesto to transform outcomes for people with rare and less common cancers'. The event was hosted by Will Quince MP at the House of Commons, Westminster. Action Kidney Cancer was represented at the event by Sharon Deveson Kell.

Read the manifesto on our website here:
Action Kidney Cancer
Cancer52 manifesto launch
Yesterday (16 April 2024) Cancer52, an alliance of over 100 charities representing rare and less common cancers, launched The Other Half. A manifesto to transform outcomes for people with rare and less common cancers. The event was hosted by Will Quince MP at the House of Commons, Westminster. Actio...
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Action Kidney Cancer
Action Kidney Cancer1 day ago
We have just added two new videos to our ask Ask the expert videos. In this series of videos, experts in the treatment and care of kidney cancer patients answer your questions.

The two new videos are Clinical Trials Part -I and Clinical Trials- Part 2.

In these videos Sharon Devenson Kell interviews Professor Grant Stewart, a urological surgeon from Addenbrookes Hospital, Cambridge, about why new treatments are tested, what is a clinical trial and why are they run, what are the different phases of clinical trials, why are people with rare subtypes of kidney cancer, brain metastases or other conditions/diseases excluded from trials, and publishing of negative clinical trials.

Sharon in Part-2 asks Grant about involvement of patients and the public in the design of clinical trials, trials to compare treatments, and why there are not more hospitals running clinical trials in the UK.

To watch these videos please follow the link below:

https://actionkidneycancer.org/help-support/ask-the-expert/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
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Action Kidney Cancer2 days ago
In this last week we have been very busy representing kidney cancer patients at a variety of different events. We attended the seventh annual International Kidney Cancer Conference in Seoul Korea.

Steve Pointon one of our colleagues was one of the guest speakers at the event, sharing his experience of living with kidney cancer.

#kidneycancer #bypatientsforpatients #StrongerTogether
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Action Kidney Cancer2 days ago
Today we are in London representing the voice of kidney cancer patients and supporting the launch of Cancer52’s Manifesto for rare and less common cancers, and its three key asks: To reduce mortality and health inequalities, increase early diagnosis, and put patients at the core of a new nation mission on rare and less common cancers.

#kidneycancer #bypatientsforpatients #StrongerTogether #c52manifesto
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