Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

12 Mar 2024

Immunotherapy improves survival in kidney cancer patients with brain metastases

8 Mar 2024

Radiotherapy for the management of renal medullary carcinoma

8 Mar 2024

Manchester patient focus group

8 Mar 2024

NICE approves cabozantinib plus nivolumab for advanced kidney cancer

15 Feb 2024

PRISM study highlights possibility of reducing dose of immunotherapy

15 Feb 2024

World-class radiotherapy in the UK

7 Feb 2024

Summary of kidney cancer highlights from ASCO GU 2024

2 Feb 2024

Cancer treatment could identify patients most likely to respond to cancer drugs

2 Feb 2024

Belzutifan and shows better quality of life compared to everolimus

18 Jan 2024

Lenvatinib plus pembrolizumab for advanced kidney cancer

16 Jan 2024

Patient's perspective on pembrolizumab/lenvatinib for kidney cancer

9 Jan 2024

METEOR study: Cabozantinib compared to everolimus in advanced kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer4 days ago
Please help Manchester University by completing their questionnaire.

We are working with year 4 students at Manchester University to help understand how cancer medication for kidney cancer patients, mainly TKIs affect the patient when taking them.

If you take TKI's either standalone or as a combination please take 5-10 minutes to complete the questionnaire and help with this valuable research.

Please contact steve@actionkidneycancer.org for all relevant information.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer4 days ago
Manchester University have extended the deadline for the registrations for people with kidney cancer to the 22nd March.

If you take oral anti cancer medicines for your kidney cancer please help with this research by taking part in their focus group..

Please contact steve@actionkidneycancer.org to receive a £20 Marks and Spencer voucher as a thank you and all necessary information.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer7 days ago
Ticket sales for this years Crewe & Nantwich Northern Soul Charity Event event are going well.

We are delighted that Steve Pointon and his parents have organised another fabulous event at The Crozzy Live music And entertainment Venue to raise funds for us.

We look forward to welcoming everyone to join us for another great day of music and dance.

To read more please follow the link below:
https://actionkidneycancer.org/.../northern-soul-and.../

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer7 days ago
If you have not already done so, please help Manchester University.

Are you taking kidney cancer medication? If so you can help by by completing this quick questionnaire (link below).

We are working with year 4 students at Manchester University to help understand how cancer medication for kidney cancer patients, mainly TKIs affect the patient when taking them.

If you take TKI's either standalone or as a combination please take 5-10 minutes to complete the questionnaire and help with this valuable research.

https://www.qualtrics.manchester.ac.uk/jfe/form/SV_0ctpMXrAWqvPl1I

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer7 days ago
A recent real world study has found that giving immunotherapy to previously untreated kidney cancer patients or stereotactic radiotherapy or surgery (focal therapy) improved overall survival time for patients with spread of their cancer to the brain (brain metastases).

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
Renal medullary carcinoma (RMC) is a rare and aggressive cancer that occurs in young people of African descent with sickle cell trait. Unlike renal cell carcinoma (RCC), where nearly 8 in 10 patients survive for 5 years or more, only 5 in 100 patients with RMC survive beyond 3 years with standard anti-cancer medication. Patients with RMC respond poorly to treatments that are effective for other kidney cancers. There is, therefore, an urgent unmet need for more effective treatment for this devastating disease.

Read more on our website here:
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