Overcoming Inequalities Report

Kidney cancer affects a large and growing number of patients. This report from Bristol-Myers Squibb (BMS) sets out a number of areas where focus from policymakers is required to ensure kidney cancer patients receive the high-quality care that they deserve, no matter where they are being treated. If the UK is to improve patient outcomes […]

One Cancer Voice manifesto

We need to make sure people with cancer aren’t just surviving longer, but living well too. With 28 other charities, we’re releasing a manifesto calling on the next Government to improve prevention, diagnosis, treatment and care. There’s a long way to go to provide people with the cancer treatment and emotional support they deserve. With […]

Cancer52 All Members Meeting – NHS Long Term Plan and NICE Methods and Processes

The Cancer52 All Members Meeting took place on Wednesday 16th October with updates from David Fitzgerald, National Cancer Programme Director at NHS England about the NHS Long Term Plan, and Lizzie Thomas and Heidi Livingstone about the NICE reviews of methods and processes. Sharon Kell represented KCSN at the meeting: Jane Lyons, CEO from Cancer52 […]

National Voices Workshop

Steve Pointon attended a workshop last week organised by National Voices on behalf of the National Institute for Health Research (NIHR) to investigate what is important to people of working age when suffering from multiple long-term conditions. There are a number of things already known, such as over a quarter of people in England live […]

Experimental Cancer Medicine Demystified, Cambridge

On Friday 27 September 2019, Sharon Kell attended the annual Experimental Cancer Medicine Demystified event held at Cancer Research UK Cambridge Institute on the University of Cambridge Addenbrooke’s campus. This is the second year that this event has taken place, and it was open to researchers, nurses, health professionals, cancer patients and patient representatives. The […]

Access to Cancer Medicines Coalition: Routes to access within NHS England

At a recent meeting of the Access to Cancer Medicines Coalition (ACMC) on 24th June, the group was joined by two external speakers from the National Institute for Health and Care Excellence (NICE) and NHS England: Heidi Livingstone, Senior Public Involvement Advisor from NICE, spoke about the forthcoming changes to NICE’s processes and methods to […]

World Kidney Cancer Day at Basildon University Hospital

On World Kidney Cancer Day last Thursday 20th June, Lydia Kigozi and Sharon Kell were delighted to be invited to attend a coffee and cake afternoon at Basildon University Hospital organised by Mr Ramachandran Ravi, consultant urologist, in aid of World Kidney Cancer Day. Around 40 patients, carers, family members and friends came along to […]

KCSN visit Eisai to celebrate World Kidney Cancer Day

The day before World Kidney Cancer Day, Carl Amoscato and Sharon Kell visited Eisai, one of the leading pharmaceutical companies pioneering new treatments to fight kidney cancer. During their visit they took part in a staff Lunch and Learn meeting, including a tombola, raffle and photo booth in aid of World Kidney Cancer Day. Sharon […]

Developments in data for rare and less common cancers

Sharon Kell attended this one day conference organised by Cancer52 in collaboration with Public Health England (PHE) on 22nd May 2019. The aim of the conference was to highlight the importance of data for rare and less common cancers. The conference was opened by Jane Lyons, CEO Cancer52, and Lindsey Bennister, CEO Waldenstrom’s Macroglobulinemia UK […]

ABPI Patient Organisation Forum: Brexit and VPAS

KCSN is a member of the Association of the British Pharmaceutical Industry (ABPI) Patient Organisation Forum. The ABPI aims to encourage the collaboration of the pharmaceutical industry and charities and to ensure that the patient is at the heart of their work to deliver medicines that have the most impact on people’s health and wellbeing. […]

Cancer52 All Members Meeting – NHS Long Term Plan and the Voluntary Pricing and Access Scheme (VPAS)

Representing KCSN, Sharon Kell went along to the Cancer52 All Members Meeting on 23rd January to hear presentations from Dr Paul Catchpole, Value and Access Director at the Association of British Pharmaceutical Industry (ABPI), and David Fitzgerald, National Cancer Programme Director at NHS England. Paul gave an explanation of the new Voluntary Pricing and Access Scheme […]

Britain Against Cancer 2018

This year celebrated the 20th anniversary of the annual Britain Against Cancer Conference, which was hosted by the All Party Parliamentary Group on Cancer (APPGC). This year’s conference focused on living well with cancer, including access to the best treatments and support to meet the needs of patients. The conference also reflected on future priorities for improving cancer care and […]

Access to Cancer Medicines Coalition: Routes to access within NHS England

KCSN believe in enabling patient access to the most innovative and effective medicines for their cancer. As such, we are members of the Access to Cancer Medicines Coalition (ACMC), a coalition of 24 cancer charities and patient groups working to ensure cancer patients have timely access to the most clinically effective medicines for their condition on the […]

Cally Palmer, National Cancer Director, speaks at the Cancer52 stakeholder briefing

Image courtesy of Jam Pond Photography @JamPond The annual Cancer52 stakeholder briefing took place on 17th October, and Sharon Kell represented Kidney Cancer Support Network at the meeting. The keynote speaker was Cally Palmer, National Cancer Director, who gave an update on the accomplishments of the current cancer strategy and what to expect in the […]

KCSN patient spoke to 20,000 Bristol-Myers Squibb (BMS) employees during BMS’s Global Patient Week

Jon Birchall, Julia Black and Sharon Kell recently visited Bristol-Myers Squibb (BMS), one of the leading pharmaceutical companies pioneering new immunotherapy treatments to fight cancer. During his visit, Jon took part in BMS’s Global Patient Week where he was able to share his kidney cancer journey, from diagnosis to treatment, to help employees better understand […]

Patients Involved in NICE (PIN)

To compliment our work with the National Institute for Health and Care Excellence (NICE) on health technology appraisals to improve access to new and innovative treatments for kidney cancer, KCSN are members of Patients Involved in NICE (PIN). PIN is a coalition of over 80 patient organisations who work together to enable patient groups to […]

KCSN working with the Access to Cancer Medicines Coalition

KCSN work hard to ensure patients are able to access the treatments they need for their kidney cancer. In addition to our work with the National Institute for Health and Care Excellence (NICE) on health technology appraisals for new medicines (you can read more on our Access to Treatments page), KCSN are also members of […]

KCSN members representing the kidney cancer community at the NCRI

Many congratulations to Alison Fielding and Salena Mulhere, who are the new patient representatives (consumers) on the Bladder and Renal Clinical Studies Group (CSG) at the National Cancer Research Institute (NCRI), which manages research into bladder and renal cancers. Both had to go through a gruelling selection process to be chosen to represent the kidney […]

Access to Data Working Group for rare and less common cancers

Because we believe strongly in the importance of access to reliable data for kidney cancer, KCSN is a member of the Cancer52 Access to Data Working Group. This group meets quarterly to investigate means of ensuring public access to clinical data held by Public Health England (PHE) for rare and less common cancers. The group […]

KCSN at the NICE Annual Conference

The NICE Annual Conference was held at the end of last month in Manchester. This is a good opportunity to catch-up on what NICE has been up to over the past past year. The conference showcases the latest developments in clinical improvement, health technologies and patient-centred quality care, providing insight into the innovations shaping healthcare, […]

European International Kidney Cancer Symposium 2018 – A Patient View

Alison Fielding was delighted to be invited to the 13th European International Kidney Cancer Symposium 2018 in Prague on 27-28th April, where she talked about kidney cancer services from a patient’s perspective. You can take a look at Alison’s presentation here: A Patient View Here is Alison’s report on the meeting: After 4 years of living with […]

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