World Kidney Cancer Day provides the opportunity for patients, carers, their friends and supporters, health care professionals and local kidney cancer organisations, to come together to raise awareness and start to answer those questions that will make a difference to stemming the growth of this cancer. Our aim is to rapidly grow global awareness of kidney cancer and encourage people to share what they know about this disease.

Leading up to the third World Kidney Cancer Day on Thursday 20th June 2019, people all around the world will be asking questions and looking for answers to help raise global awareness of kidney cancer. KCSN will be tweeting and posting information on social media, so please follow us on Twitter @KidneycancerSN and Facebook @kidneycancersupport.

Take the 2-minute interactive quiz here, and test your knowledge of kidney cancer!

Read our reports about the first two World Kidney Cancer Days below:

The first ever World Kidney Cancer Day (WKCD) went a long way towards meeting its objectives of improving awareness, both nationally and internationally. Kidney Cancer Support Network (KCSN) were instrumental in building awareness of the day throughout the UK, with a press release, fundraising events, a social media campaign, and patient interviews. 

World Kidney Cancer Q&A Day was established by the International Kidney Cancer Coalition (IKCC). KCSN are proud to be a founding member of the IKCC and we support this global event, the aim of which was to raise awareness and funds for kidney cancer research. The IKCC ran a World Kidney Cancer Q&A Day quiz on their website: Over 11,000 people from Ghana to Australia visited the IKCC website to complete the quiz and help raise funds at the same time. More than 1,500 people completed the quiz from the UK, which was the second highest country behind the US with just over 3,000 people. In the meantime, if you haven’t already done so, why not test your knowledge of kidney cancer and do the quiz, which will remain live on the World Kidney Cancer Q&A Day website.

The KCSN press release was picked up by two major media outlets:

  • The Express ran a piece highlighting the 5 main signs of kidney cancer, and Rose Woodward was quoted as saying, “Making a significant difference in the lives of patients starts by increasing awareness – knowing the symptoms, knowing treatment options and knowing where to find support. Medical experts agree there is an opportunity for global collaboration to raise awareness about kidney cancer – because when we all work together we are stronger and can have a greater impact than we can alone.”
  • Channel 5 News got in touch asking for interviews with patients and a clinician to feature in their 5 pm news on Friday 23rd June. Arrangements were made  but Unfortunately, the feature was dropped at the last minute to due other more pressing news items that came to light the night before.

 

KCSN has also been working with Reynolds-Mackenzie, a leading PR agency, and we plan to run a follow-up feature about kidney cancer, involving an in depth interview with a patient about the effect of the disease on family life in the national press over the next few days. Watch this space for an update!

The KCSN social media campaign was a resounding success: In June we achieved over 29,000 Twitter ‘impressions’, compared to May where it was just over 5,500 – a big leap! Impressions give an indication of potential audience size. Hundreds of tweets were written and retweeted during June, culminating in a very busy World Kidney Cancer Day! Some KCSN members posted the World Kidney Cancer Day quiz on their own social media accounts to generate awareness amongst their friends. In one case the post about World Kidney Cancer Day was seen 17,400 times and received over 2,000 likes. This demonstrates the reach of some of our KCSN members!

In addition to the social media campaign, KCSN raised awareness of World Kidney Cancer Day through the use of WKCD imagery on the home page of the KCSN website (www.kcsn.org.uk) and a dedicated WKCD page with links to the kidney cancer quiz, Thunderclap and fundraising pages. During the week of WKCD the number of KCSN website users increased an impressive 58%, and the number of sessions increased 60%, with almost three quarters (74%) of the audience residing in the UK.

The KCSN Go Green for Kidney Cancer campaign helped to spread the word with some fun photos of our members with green lips, nails and hair, while at the same time generating some much needed funds for the charity! So far £500 has been raised. Those who donated to the KCSN Go Green for Kidney Cancer campaign received one of our new kidney cancer wrist bands. Here are some of the many images that were posted:

 

 

Finally, on World Kidney Cancer Day itself, brave Jasmine Cohen and Jean Wu went paragliding and have so far raised a fantastic £4,500 for KCSN – the kidney cancer community are eternally grateful for this generous donation! Other fundraising events included coffee mornings, book sales, and a lunch party at Guildford Cathedral.

Globally, social media engagement with the IKCC was increased, as follows:

Twitter – Between 2 May and 25 June 2017, IKCC’s Twitter following increased by 46% to a total of 2,327 followers.  Engagement on Twitter during the time period achieved nearly 200,000 impressions.

Facebook – Between 2 May and 25 June 2017, IKCC’s Facebook community increased by 96% to a total of 9,032 likes.  Engagement on Facebook during the time period achieved a reach of nearly 95,000 people.

Thunderclap – the virtual online flash mob, coordinated social posts on World Kidney Cancer Q&A Day, which resulted in a combined social media reach of over 230,000.

A global press release from IKCC announcing World Kidney Cancer Q&A Day was shared around the world in 12 languages and posted to 439 news websites with a potential combined audience of 81.6 million people.

 

World Kidney Cancer Day has not only helped to raise awareness of this devastating disease on a global basis, but has also helped to highlight the valuable work of the KCSN supporting patients and families with kidney cancer throughout the UK. It has also helped to raise some much needed funds for the KCSN, and we are especially grateful to the sponsors of this event in the UK for helping to make the day a great success:

                

Bristol-Myers Squibb and Ipsen have provided part funding for this campaign but have had no editorial input into the programme or content of the campaign.

The second World Kidney Cancer Day (WKCD) took place on Thursday 21 June, and helped to improve awareness of the signs and symptoms of kidney cancer, both nationally and internationally. Kidney Cancer Support Network (KCSN) led the promotional activities in the UK and was instrumental in building awareness of the day, with Ambassadors, press releases, fundraising events, a social media campaign, and patient interviews.

The International Kidney Cancer Coalition (IKCC), a global body of over 30 patient organisations focused on improving the lives of people affected by kidney cancer, established World Kidney Cancer Q&A Dayin 2017. KCSN are proud to be a founding member of the IKCC and we support this global event, the aim of which is to raise awareness of kidney cancer. The IKCC ran a World Kidney Cancer Q&A Day quiz on their website and had people completing the quiz from all corners of the globe.

The KCSN media and online campaign included the following patient stories, which were published in print and online, and were accessible to a combined audience of over 140,000:

  • The Chichester Observer ran a health feature on World Kidney Cancer Day 21 June featuring Martin Price, a volunteer member of the KCSN admin team, highlighting the global World Kidney Cancer Day campaign
  • The Lancashire Evening Post ran a full-page health feature on kidney cancer, highlighting Peter Flynn’s experience after giving blood helped to diagnose kidney cancer. Peter is a KCSN Patient Champion.
  • The Harborough Mail ran a front page story featuring Rebecca and James Dixon and the impact kidney cancer has had on their lives. Rebecca and James are both active members of the KCSN.
  • A front-page article on the NHS England intranet (internal website) for all its employees (with a reach of 6,500) on World Kidney Cancer Day linking to the global quiz.

 

The following interviews with KCSN patient members were broadcast on two radio stations in areas where the combined population is over 1.3 million:

  • Steve, a patient from KCSN, spoke on BBC Radio Stoke highlighting his diagnosis of kidney cancer whilst his wife was pregnant. Steve had never heard of kidney cancer and wanted to draw attention to the global World Kidney Cancer Day
  • Sarah, another patient from KCSN, spoke on BBC Radio Humberside on World Kidney Cancer Day. Sarah is a teacher with an incredible story to tell about how she was diagnosed after falling whilst on a school trip and broke her leg miles from home. Whilst being treated in the hospital she was diagnosed with kidney cancer.

 

The following groups/Ambassadors all supported our online campaign reachinga combined audience of over 300,000 across various online platforms:

  • @BAUNnursesBritish Association of Urological Nurses (BAUN)
  • @SorayaVivian – Soraya Vivian, singer and songwriter (mostly Instagram)
  • @NewLifeWriter– Malcolm Sinclair– writer
  • @volewriter– Kate Long, best selling author and vole writer
  • @FacingUp2KidneyCancer  – Jon & Sarah Birchall, members of the KCSN and well known fundraisers for kidney cancer research
  • @NIHRCRN_gman – the Clinical Research Network for Greater Manchester
  • @missfitcreates– Debbie Murphy kidney cancer blogger
  • @BenBlack10 – social media influencer
  • @landg_uk – Legal and General
  • @NHSEngland – NHS England.

 

The KCSN social media campaign was a great success: In June alone we achieved over 57,000 Twitter ‘impressions’, with nearly 14,000 on World Kidney Cancer Day itself. Some KCSN members posted the World Kidney Cancer Day quiz on their own social media accounts to generate awareness amongst their friends. One of our supporters posted a World Kidney Cancer Day video on his social media platforms with a combined following of 1.5 million. He achieved combined impressions/views of 50,000 and 5,900 likes. This demonstrates the reach of some of our KCSN members!

In addition to the social media campaign, KCSN raised awareness of World Kidney Cancer Day through the use of WKCD imagery on the home page of the KCSN website and a dedicated WKCD page with links to the kidney cancer quiz and fundraising pages. During the month of WKCD, 81% of KCSN website users were new to the site, with more than half of the audience residing in the UK.

The KCSN Go Green for Kidney Cancer campaign helped to spread the word with some fun photos of our members/supporters with green lips, nails, and hair, while at the same time generating some much needed funds for the charity. Here are some of the many images that were posted:

Finally, on World Kidney Cancer Day itself, Legal and General had a ‘Wear Green Day’ at their Cardiff Office to raise funds for KCSN and promote the World Kidney Cancer Day quiz. Along with a raffle, they raised a fantastic £1,354, which will be match-funded by Legal and General to bring the total to £1,854 – many thanks to all the staff at the Cardiff office of Legal and General!

Other fundraising events included coffee mornings, ‘Wear green to work’ days, and a green cake sale at a local hospital.

Globally, the 2nd World Kidney Cancer Day was a great success. We are building momentum worldwide! In the first 2 years we have achieved:

  • 650,000 social media impressions
  • Over 20,000 people have completed the World Kidney Cancer Q & A Day Quiz. The UK have done particularly well, coming second to the USA in the league table for number of people who completed the quiz
  • Facebook achieved a reach of over 250,000 people globally. This was a 260% increase on 2017 where 95,000 people engaged
  • Twitter achieved over 46,000 impressions, 1017 engagements and 284 likes.

Through global collaboration, we are raising awareness and providing a platform for action at local and national levels. Read the World Kidney Cancer Day campaign report here.

World Kidney Cancer Day has not only helped to raise awareness of this devastating disease on a global basis, but has also helped to highlight the valuable work of the KCSN supporting patients and families with kidney cancer throughout the UK. It has also helped to raise some much needed funds for the KCSN, and we are especially grateful to the sponsors of this event in the UK for helping to make the day a great success:

      

 

Read our press releases here:

WKCD Press Release1 2018-06-05

Press Release Soraya WKCD 2018-06-18

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