First global kidney cancer patient survey

We are delighted to support the first ever global kidney cancer patient survey. The aim of this survey is to build a global picture of what it’s really like to experience kidney cancer, country by country. Your thoughts and experiences are so valuable: Please spare 10 minutes to complete the survey and help us identify areas for improvement in patient care to ensure patients get the best care possible in their individual countries.

Please add your voice and help us gather this important patient information worldwide. Please click the following link and thank you for taking part.

Kidney Cancer Support Network is here to help and support you

We are the UK’s largest and most active patient-led kidney cancer charity. Whether you are a patient, survivor or someone you know has been diagnosed with kidney cancer, you have come to the right place to find support and information, and to be part of a caring and knowledgeable community of people: We are here to help you.

The KCSN has been supporting kidney cancer patients and carers since 2006. We are a very special type of charity. We are all cancer patients or carers to people with kidney cancer, and we provide a very special type of support because we know just what you are going through.

The KCSN has many hundreds of members across the UK whose lives have been affected by kidney cancer; we share our experiences and we support and care about each other. You can find out more about who we are and how we support each other by reading our About Us page.

Looking for a clinical trial?

Using our powerful Clinical Trials Database, you can search and find kidney cancer clinical trials near you. This could help you access new and innovative treatments, as well as help future generations of kidney cancer patients and their families.

The database is easy to use and you can search for a clinical trial using key words/phrases, your town or postcode, type of trial (drug, surgery, observational), kidney cancer subtype, drug name, or status of trial (open, closed or in planning), using the relevant search boxes.

Each trial entry lists all the sites taking part in the trial, and information about the trial, such as eligibility criteria, trials assessments and contact details, written in patient-friendly English. There is also a list of useful questions you might want to ask your doctor.

Take a look in our Clinical Trials Hub and learn about clinical trials, access the database and read personal accounts about taking part from fellow patients who share their experiences.

Learn more about kidney cancer

Go to our Information Hub to find out everything to do with kidney cancer. Learn about treatment options, access to treatments, living with kidney cancer, managing side effects, and much more. Find NICE guidelines and NHS policies, patient 2 patient help sheets, our kidney cancer glossary and some useful links to other websites. Be sure of getting friendly advice and accurate information in patient friendly language.

Information Hub

Please get in touch – we are here to help

You can phone our kidney cancer helpline for a confidential one-2-one talk with another cancer patient. Or if you prefer, please email us directly with any kidney cancer-related questions. You don’t have to face kidney cancer alone; we can help by offering friendship, support and by sharing experiences, because together we are stronger.

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Opinion Pieces

KCSN patient spoke to 20,000 Bristol-Myers Squibb (BMS) employees during BMS’s Global Patient Week

Patient Stories

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