World Kidney Cancer Day, 21st June 2018

Join us to raise global awareness of kidney cancer by completing a fun 2-minute quiz and posting a selfie with green lips to kiss off kidney cancer!

Post on social media to share the quiz with your friends.

Please email us  if you would like to do some fundraising for the day and visit our JustGiving fundraising page here. Visit our World Kidney Cancer Day 2018 page for more information.

Kidney Cancer Support Network is here to help and support you

We are the UK’s largest and most active patient-led kidney cancer charity. Whether you are a patient, survivor or someone you know has been diagnosed with kidney cancer, you have come to the right place to find support and information, and to be part of a caring and knowledgeable community of people: We are here to help you.

The KCSN has been supporting kidney cancer patients and carers since 2006. We are a very special type of charity. We are all cancer patients or carers to people with kidney cancer, and we provide a very special type of support because we know just what you are going through.

The KCSN has many hundreds of members across the UK whose lives have been affected by kidney cancer; we share our experiences and we support and care about each other. You can find out more about who we are and how we support each other by reading our About Us page.

Make a difference and join the KCSN patient registry

Please help us with a very special and unique project. We are gathering  information about the diagnosis, treatment and care of kidney cancer patients in the UK’s first kidney cancer patient registry. Patient-generated data like this has been a huge gap in the armoury of clinicians and researchers, who need real world data to help them in their work.

Real world data is the information collected from patients outside the constraints of a clinical trial to evaluate what is happening in normal clinical practice. It can tell us what happens as patients go about their everyday lives whilst being treated, and it can give information about side effects to drugs, quality of life and recovery after surgery.

The use of real world data is becoming increasingly important to researchers, clinicians and regulatory bodies, such as the National Institute for Health and Care Excellence (NICE), where it can affect decisions made about access to new innovative medicines.

KCSN is in a unique position to do this because we have the largest and most active membership of patients and carers to run an important project like this. We would like to invite you to become part of the first ever UK-wide registry of kidney cancer patient information.

Please visit our Patient Registry page for further information and to access the patent registry.

Please note:  The requirements of the General Data Protection Regulation (GDPR) 2018 will be strictly followed at all times when handling personal health and identifying information. Please see our Privacy and Data Protection Policy for more information about what this involves.

Learn more about kidney cancer

Go to our Information Hub to find out everything to do with kidney cancer. Learn about treatment options, access to treatments, living with kidney cancer, managing side effects, and much more. Find NICE guidelines and NHS policies, patient 2 patient help sheets, our kidney cancer glossary and some useful links to other websites. Be sure of getting friendly advice and accurate information in patient friendly language.

Information Hub

Questions about research and clinical trials

Take a look in our Clinical Trials Hub and learn about the latest kidney cancer research. If you need to find a clinical trial for a particular drug, then check out our unique Clinical Trials Database. And you can read personal accounts about taking part in a clinical trial from fellow patients who share their experiences here.

Clinical Trials Hub

Please get in touch – we are here to help

You can phone our kidney cancer helpline for a confidential one-2-one talk with another cancer patient. Or if you prefer, please email us directly with any kidney cancer-related questions. You don’t have to face kidney cancer alone; we can help by offering friendship, support and by sharing experiences, because together we are stronger.

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Opinion Pieces

European International Kidney Cancer Symposium 2018 – A Patient View

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