Welcome to our KCSN community: Together we are stronger

Our community is a place for all kidney cancer patients, survivors, carers and family members to come together to talk about their experiences and share information. By joining KCSN you will immediately become part of an active and caring community; one which we all understand because we know exactly what you are going through.

The Internet can be a powerful force for good, and because we use it responsibly, a patient-led network such as ours can provide a way for people to come together. We can pool our knowledge and insights, and share unique experiences of kidney cancer so that other people can identify with each other, and draw strength and hope. We believe passionately that by reaching out to each other and sharing our knowledge, we can support one another in a way that was previously impossible prior to the Internet.

This is what our members say:

“I was diagnosed with metastatic KC having been told and believing for 3 years that I was all clear post nephrectomy. For a few months I just did as I was told and took the sunitinib as recommended. I had joined a number of other website forums, but had a limited response and no real help, then a chance referral by another member lead me to join the Kidney Cancer Support Network (KCSN) and it was a revelation. Suddenly I was not alone, I could ask any question I wanted and get instant useful responses and real support in the difficult times. I have gone from complete ignorance to being knowledgeable on all things KC, entirely as a result of being part of the KCSN. I’ve also made new friends, both remote and face-to-face through the Kidney Cancer Support Network. It is the only place to go for support for anyone with kidney cancer.”

And

“I am a carer! I was scared and felt alone! I didn’t know what was going on. Someone on Macmillan site suggested the Kidney Cancer Support Network. I joined! This is now my family! People with honest answers and support unconditionally! I wouldn’t have got through this without the 24:7 support from this amazing group.

Please join us and be part of our KCSN community, share experiences, information and knowledge, and help us make a real difference to everyone affected by kidney cancer.

Receive our newsletter and other important updates on KC

By registering with us you will be added to our mailing list to receive our newsletter and other important announcements about kidney cancer, you can opt out at any time.

Join our Knowledge Forum

An online library of kidney cancer books, leaflets, blogs, articles, research papers and all things connected with kidney cancer.

A place for you to share your knowledge, experiences and information to help others cope with the day-to-day reality of living with kidney cancer.

Please join us and help us build this unique online kidney cancer resource to help kidney cancer patients now and in the future.

Join our KCSN Patient Registry

Create your own online health profile and help us gather information about the diagnosis, treatment and care of kidney cancer patients.

Help us build up a true picture about how drugs and other treatments are used in the real world outside clinical trials.

Your personal health profile will be totally confidential, all your data will be encrypted and anonymised for the purposes of analysing and reporting the data. You can be 100% sure no personal identifying information will be accessible or made available to anyone outside the KCSN charity. Please see our Privacy and Data Protection Policy for more information.

 

Register here to join the KCSN community and complete a personal health profile

Login here to access your personal health profile

If you have any questions about registering with KCSN, or would like additional information please email us.

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