Clinical trial resources

This section of the website contains some useful resources, which are designed to help you understand the clinical trial process. These resources also provide you with further information about clinical research to help you make a decision about taking part in a clinical trial. On this page you will find links to videos, articles and slide presentations, which provide information in addition or complimentary to that contained within our website.

Please note, that we cannot be held responsible for the contents of any pages referenced by an external link.

Canadian Cancer Survivor Network: Clinical Trials 101

This webinar, from Canadian Cancer Survivor Network, will tell you what you need to know about clinical trials, their history, and help you prepare for a trial. If you’re currently considering participating in a clinical trial, this webinar may help to answer many of your questions. In the presentation you’ll learn the difference between different […]

Are patients being told about opportunities to take part in research?

The recent Cancer Patient Experience Survey (CPES) shows that a little over a quarter of all patient (27%) had a discussion with their doctor about taking part in research. This article from Cancer Research UK questions why this is, and looks at the variability between Hospital Trusts with respect to whether cancer patients are being […]

Safety of medicinal products in the EU

The European Commission have produced a slide presentation covering all aspects of the development of medicinal products from clinical trials through to the use by a patient.   The presentation describes how medicines are authorised and monitored in the European Union. It is interactive, and simple to use and understand. Click here to follow the life […]

Human Tissue Authority

The Human Tissue Authority (HTA) is the regulator for human tissue and organs. The HTA was set up in 2005 following events in the 1990s that revealed a culture in hospitals of removing and retaining human organs and tissue without consent. The legislation that established the HTA not only addressed this issue, but also updated and […]

Is it worth doing?

In recent years, there has been considerable interest in finding out what difference patient and public involvement makes to research projects. The evidence published so far has been criticised for being weak and anecdotal. Some people argue we need robust evidence of impact from scientific studies of involvement. This review considers examples of where impact has […]

Independent Cancer Patients’ Voice

Independent Cancer Patients’ Voice (ICPV) is a patient advocate group, independent of established UK cancer charities, and aware of the value of medical research to both public health and to the national economy. Their aim is to improve existing treatments for every cancer patient, and develop new treatments by bringing the patients’ voice into clinical research by; (1) educating, […]

NCRI Clinical Studies Groups

The National Cancer Research Institute (NCRI) Clinical Studies Groups (CSGs) have been in existence for more than ten years, and are a central part of the UK’s cancer research infrastructure. There are 19 CSGs that bring together clinicians, scientists, statisticians, patients and lay representatives to coordinate development of a strategic portfolio of trials within their field. […]

Patient Research Ambassador Initiative (PRAI)

A Patient Research Ambassador is someone who promotes health research from a patient point of view. They could be a patient, service user, carer, or lay person who is enthusiastic about health research and willing to communicate that to other patients and the public, as well as healthcare professionals. To enable the NHS to embed […]

MRC Patient and Public Involvement Group

The Medical Research Council (MRC) Clinical Trials Unit (CTU) is based at University College London. The MRC CTU Patient and Public Involvement (PPI) Group is responsible for developing, promoting and supporting the active involvement of patients and the public in all clinical studies that are being led by MRC CTU. Members of the Group provide […]

NIHR Consumer Liaison Group

The National Institute for Health Research (NIHR) Consumer Liaison Group (CLG) operates to improve the quality, relevance and benefit of cancer research for patients and their families through the active involvement of patients, carers and the public. The Group brings together people with personal experiences of cancer, including patients, carers and relatives with an active […]

INVOLVE

INVOLVE is a national advisory group funded by the National Institute for Health Research (NIHR) that brings together NHS patients, carers, service users and researchers to make sure research is focused on the issues that really matter. There are a range of opportunities for getting involved in research. Involving members of the public in research […]

NIHR Clinical Research Network

In 2006, the Department of Health set up the National Institute for Health Research (NIHR) within the NHS, and the Clinical Research Network is part of this wider organisation.  At the centre of the work of the NIHR is a portfolio of high-quality clinical studies that benefit from the infrastructure provided by the Clinical Research Network. The NIHR […]

Lilly Trials

Lilly Trials is a selection of resources that help to make clinical research ‘more connected, engaging, and accessible than ever before.’ Lilly Trials is managed by Eli Lilly and Company (a pharmaceutical company) and is part of an initiative to involve patients in the development of new medicines through ‘open and honest conversations with patients, caregivers, […]

Patient on trial – what trial participation is really like

A melanoma patient describes her personal experience with trial participation and what randomisation to an inferior comparator is like: a must-watch for anyone concerned about patient participation in clinical trials and any trial designer. This is a very frank account of a stage 4 melanoma patient’s experience of clinical trials. However, please remember when watching […]

Taking part in clinical trials – how patients can make a difference

A short information film about clinical trials where patients share their experience of taking part. Click on the screen below or click here to see the video. Presented by patient and carer representative, Simon Rodwell, the film covers three key areas: • What clinical trials are • What is involved for the people taking part […]

PET CT scans in clinical research

The NCRI PET Research Network has produced a video to give patients an idea of what is involved when you have a PET CT scan. PET stands for ‘Positron Emission Tomography’ and CT stands for ‘Computerised Tomography’. The video also explains the science behind a PET CT scan, and the ways PET CT scans might […]

Research Involvement and Engagement

Research Involvement and Engagement is an interdisciplinary, health and social care journal focussing on the engagement of patients and the public in research, at all stages. The journal is co-produced by all key stakeholders, including patients, academics, policy makers and service users. The editors welcome articles from anyone involved with research and supporting, encouraging, or delivering […]

What is Patient and Public Involvement?

The following short films on Patient and Public Involvement (PPI) in clinical research were made at the Medical Research Council (MRC) Clinical Trials Unit at University College London (UCL). They aim to answer common questions about PPI and share some experiences of patients and the public. What is patient and public involvement explores how patients and the public […]

What is meta-analysis?

Meta-analysis is a statistical technique for combining the results (data) from multiple independent studies to provide an estimate of treatment effect, giving due weight to the individual studies included. Meta-analysis improves estimates of the size of the effect of a particular drug, and/or resolves uncertainty when reports disagree. Decisions about the use of a new treatment cannot be based […]

Ever wondered how and why we do clinical research

Find out the answers to this and much more in the National Institute for Health Research (NIHR) free online course, available to anyone wanting to understand more about clinical research. Entitled ‘Improving Healthcare through Clinical Research’, the course runs for 6 weeks (start dates are listed on the website). It is a flexible approach to […]

European Patients’ Academy (EUPATI)

The European Patients’ Academy (EUPATI) is a pan-European Innovative Medicines Initiative project of 33 organisations, led by the European Patients’ Forum, with partners from patient organisations (the European Genetic Alliance, the European AIDS Treatment Group, and EURORDIS), universities and not-for-profit organisations, along with a number of European pharmaceutical companies. EUPATI focuses on education and training to […]

What are clinical trials and what can I expect if I enrol?

Prof. Alan Burnett from Cardiff University describes the different phases of clinical trials and how they work. This video was recorded at the American Society of Hematology (ASH) Annual Meeting 2015, in Orlando, Florida, and was commissioned by the Patient Empowerment Foundation. Click on the screen below or click here to see the video (duration 2 […]

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